Lived Experience of caregivers' burden for dementia patients at home in community

LI Ying-li; GUAN Qing; WANG Yue-feng; MENG Li-na

doi:10.3969/j.issn.2096-5516.2021.03.016

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Chinese Journal of Alzheimer's Disease and Related Disorders ›› 2021, Vol. 4 ›› Issue (3) : 249-252. DOI: 10.3969/j.issn.2096-5516.2021.03.016

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Lived Experience of caregivers' burden for dementia patients at home in community

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Abstract

Objective: The objective of this study was to explore the lived experience of caregivers' burden for dementia patients at home in community in order to give caregivers targeted support and help. Methods: A total of 11 dementia patients' caregivers at home in a community were chosen to interview deeply. Data analysis used the methods of phenomenology. Results: After analysis five themes were found, that were exhaustion, over-anxiety for patients' safety, economic burden, communication barriers, hardly to get patients' real needs, unequal emotional connection. Conclusions: Caregivers' burden affected their physical and mental health. Communication barriers and blocked emotional connection also influenced the effect of care. We should offer dementia family and caregivers professional support and help with policy and professional standpoint.

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old age at home / dementia / caregivers' / qualitative research

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LI Ying-li , GUAN Qing , WANG Yue-feng , et al. Lived Experience of caregivers' burden for dementia patients at home in community[J]. Chinese Journal of Alzheimer's Disease and Related Disorders. 2021, 4(3): 249-252 https://doi.org/10.3969/j.issn.2096-5516.2021.03.016

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